TSC Alliance funds research to combat tuberous sclerosis complex (TSC), a genetic disorder that affects 50,000 Americans by causing tumors in various organs. Considered a “linchpin” disease, it shares features with other common diseases, such as autism, epilepsy, and cancer. The organization works to improve quality of care, advocate for those affected by the disease, and provide support services, thus serving both the patient and the medical/scientific communities.
Graham-Pelton partnered with TSC Alliance in assessing the feasibility of an ambitious research-focused campaign – the first in the organization’s history. We began with a planning study that identified the organization’s strengths, including motivated leadership that possessed a genuine desire to find a cure for this devastating disease and improve the lives of those affected by it. When it came to engaging donors, they felt frustrated by a lengthy cultivation process – and the accompanying pressure that timely research might not be completed without the funding.